Love, Poetry and Revolution - Monday 2nd September 2024
September arrives before I find the time to write more in August, but last week was busy and fun, hence no time to write. E seems to be enduring a difficult phase, with many short but frequent mini-seizures. It's been going on for over a week now, and, in conjunction with the Sue Ryder nurse, it's been agreed that we increase the dose of the anti-seizure medication she takes. The GP has agreed to it so it's just a matter of getting official word to the carers so they can enact the change, legally. It must be a living nightmare for E, being locked in, confused and experiencing pain and discomfort that we can often only guess at. I'm powerless to do anything to ease her suffering, other than by informing nurses or the doctor so they can act if they agree it's justified. Whilst I'm away the sense of relief and easing of tension that I feel is noticeable. It may seem cowardly to be away from E so often, but the stage E is at now is even more stressful than it was b...