Love, Poetry and Revolution - Monday 25th November 2024

As things progress for E, the level of stress we are all experiencing has increased. Stress tends to creep up on you unnoticed until it overwhelms you.  

Often, it takes someone else to spot the signs of increasing stress. It's getting to the level where I need to take action for my own sanity.

My sons are also stuck and struggling to move on with their lives, which is not something E would ever have wanted.  There are some changes which we've been resisting but which I now must consider. It's not ideal, but when E came out of the hospital some two years ago the prognosis was not good and it seemed that, for such a short time, it would be best for E to spend her remaining days at home.  Two years later the downside of that decision is painfully clear. 

After the next palliative care visit, at which I'll discuss all the above, I will begin to set the wheels in motion to change things. It will probably take a while, and given how E has been lately, it may never happen.  This change would open the pressure release valve.  Perfection doesn't exist in the real world. Oxygen mask etc.

Nick Cave & The Bad Seeds /  'Conversion'  / 'Wild God'


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